A Thank You Note

During the past airing of our stay-cation illness shuffle, I thank my readers for bearing up with my/our tales of woe. I know some things are a little bizarre, such as doctors, but hey, I guess it comes with the golden years.

It can be rather frustrating, with everyone going away on vacations and cruises and the like, and we were happily home. I really think God was laughing when he was deciding to make us stay home and rest. By that, He meant doctor’s offices and urgent care!

Maybe we just need to vegetate and get ourselves better, fast.

Feeling .001%

Here we go again.

I have not been feeling well for a while.

I have some issues percolating, and am bothering my GI’s office trying to get my appointment moved up.I told them how bad I felt and the bast they could offer my was May 30th.

Hello, Emergency Room? That’s what it’ll be if I get another attack and can’t be seen earlier.

In the meanwhile, I managed to comedown with severe chest congestion over Easter.With the internet being a blessing or curse, I figured out I might have pneumonia or severe bronchitis. Hah! I had an appointment this morning with a new Internist who said, basically, my lungs are congested but my sinuses are pretty well screwed up? Excuse me? I have a cough that sounds like I smoked a pack of Pall Malls daily for 58 years, and only had sinus symptoms last night and this is the diagnosis?

**Shaking my head**

I realize I don’t have a medical degree, but I think I know my body. I am hoping that the combination of prescriptions will work their magic.If not, well…stay tuned!

Dark Clouds

Whenever I seem to post something on Facebook, I often have a comment or two made by people who always have seem to have an “answer” for everything.

President of another party that isn’t theirs? “Not my president.” Things happening to friends of yours? “What did they do to cause it?” It gets to where I don’t necessarily want to stop people from posting on my Facebook wall, but it has given me reason to shy a little bit away from Facebook.

I got news today about someone in my life who is ill.That is all that I am going to say about it, because sometimes that is all that needs to be said. It does give me reason to wonder about the people who would comment, and what would happen to them if they, God forbid, became ill. I am sure the cause would be everyone’s fault but theirs.

It is hard to see friends combat illness. What even makes it more difficult is when there is physical distance between people. It would be nice to be able to help out, but unfortunately, help can only be offered from a distance as best as friends can. Sometimes prayers and good thoughts on one end are appreciated, and sometimes, people just need someone to listen to them and their problems.

Anyway you slice it, caregiving long distance is still caregiving. Granted, it’s not “hands on” caregiving, but the care is there, just the same. It is what friends do for each other.

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Another Good Anniversary.

This was an anniversary between me, God,Jefferson University Oncologic-Gynocolgy department and Dr.Charles J.Dunton,not to mention other doctors, nurses, staff, my best friend Kate and religious advisors.

I was diagnosed with stage 3 cervical cancer 23 years ago today.What an experience! Doctors, nurses, having to call my parents from the hospital to inform them that I wasn’t coming home because a grapefruit was found in my cervix and I needed exploratory surgery.Then came the pain of them coming to see me in the hospital and seeing the pain and fear in their eyes.That pain I will take with me to my last day.Kate was living in Pittsburgh at the time and drove back on the weekends when I was in for my chemotherapy.

I usually make a post on this every year to show the people who might “think” or”know” they have cancer.You really can’t ignore it. You need to take a pro-active stance on trying to get the invader out of your body.I went through a radiation and chemotherapy protocol that was so effective that it is now the standard for cervical cancer treatment.You never know.

If you have a friend or family neighbor going through the disease, be supportive, if they choose to tell you about it.Let them know you’d like them to be around for a good,long time.

That’s why I am here 23 years later.

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New Day

So, rather than giving in to pain, I got up at 6:30am this morning and, as a result, had a heck of a lot more time to do things during the day.

The girls got a few walks, everyone who needed medicine got it, worked in baking an apple cake and a pork tenderloin, and also did a little bit of wash.
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As I haven’t been back to work yet, I figured I’d try to get some older clothes together and bundle them up for charity.The week will end up on Friday when I have to go back to the infectious disease doctor for an update.I would assume that after that, I’d go back to the orthopedic doctor one more time for a sign-off.It is an assumption, because realist that I am, I KNOW that anything that CAN go wrong, will.

Today, however, was a Blessed day.

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Home Sweet Home

I couldn’t sleep too well last night in anticipation,or should I say,dread, of today’s office visit with the orthopedic doctor.That doesn’t really speak too well of him, as he is a good guy and I am comfortable with him.

I awoke around 2:30am, after falling asleep around 12, and when I woke up, well, that was it.I knew I had packed a bag with hospital essentials and dreaded the fact that I might have to use it

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When I got back to the exam room, he came in and greeted me and looked at my knee.The big question, although he could see where the knee was lightening up, was if the antibiotic would be enough for one more round of it.He had prescribed one 750mg pill every day for two weeks.He really had a twinge of concern in his voice, and said he wanted me to go see an infectious disease specialist to see if I needed something stronger.When he said that, my heart sank.I really, really did not want to get admitted, although the logical part of my brain and my past experience knew that it was probably likely.Once he announced that the infectious doctor used a lot of IV antibiotics, well, it was if a cinder block settled in my gut.

Fortunately, the new doctor’s office was not that far away, but I was so worked up that even my blood pressure was working its’ way to run off the roof. Fortunately, the doctor was a nice guy and after all was said and done, I was able to come home with Jim and my “nurses”, deeply appreciative that I would be putting my head on MY pillow tonight.In the grand scheme of things,I was content.
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Here are my nurses, both above and below.

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So a big thank you to all who have read my posts on the cellulitis I am going through, and thank you for your prayers, beads worked, and good wishes sent my way.Trust me, they are deeply appreciated.I go back to the infectious disease doctor a week from today, so please keep them coming!

Missing…

God, I miss being outside!

Since I’ve been sick I’ve been as far as the perimeter of the front yard and back yard, although Jim and I snuck out real quick for some banking this afternoon: it was a car ride so it really didn’t count!
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We have spectacular sunsets down here at the bay, and I have to admit, there are times where I’d just be too tired, and I figured I’d walk down to the bay tomorrow and, like mass transit, “catch the next one.”

I don’t think I’m going to be missing them once I get better.The key here, though, is to actually BE better so I can walk down and catch them. I know the girls miss being out, and being in the yard, for them, is a lousy substitute.
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The girls are with me as I type this, and Zush is lying low and Kasia is looking out the window for her dad. I have a lot of mileage to make up with them!
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A Z pack later

For the first time since the end of February, I am home sick. Really sick.

I don’t know how this got to this point but I am glad I got the antibiotic and this morning I cooked up a pot of chicken soup for me so I have been nibbling on salty pretzel nuggets, Ritz crackers and chicken broth. Appetite isn’t really the issue.I am just sore as all hell from all this hacking.

One really weird thing was calling out sick.I actually miss the kids, knowing that they are probably responsible for my illness..lol.I have come to understand the affection behind working with children. Hey, I remember some of the good teachers and nuns I have had.At the age of 46, I finally get it.

It is easy, too, because, I love my fur girls and the love there is unconditional.Granted the children affection isn’t unconditional, but the interaction is so nice.

Doctor’s order’s has me lying low over this weekend, so I hopefully will be back with the kiddos on Monday.

The Cheese stands Alone

We were without the lead teacher today,due to illness. Correspondingly, it made for two of us to lead the class.

Between students having a rough time, and all who came into our room as we were honking, sneezing and coughing in unison, I think the department oh health was soon to follow.

So after a  7 day battle I have thrown in the towel.The md has put me on a Z pick, so I am sure the weekend will be questionable, but if good health returns, it’ll be worth it 

To all those who have come before me…

..such as my cousin Bernadette, the grade school nuns. high school teachers,college professors and friends such as Jane Sennett Wilson, Debbie Zinnar, Greg Miziorko and Gen Dagney…did you all take an oath not to let the new people in regarding student borne illnesses? Do you have to do the job for 25 years before they tell you? Oh sure, take tea, honey, brandy, vodka, Tamaflu, Tylenol PM…..hahaha.

At last count, thanks to my buddy, Kate, I have a bad virus, that tends to linger, based on being in the classroom with little guys with habitually runny noses.Thanks to a spill in the neighborhood the other night with Kasia and another pup, I feel as though I got hit by a bus.
But there is something about forcing fluids and Mucinex and yet,with thanks to Lord Tennyson, when I go in the morning, feeling as though I am indeed, leading the charge of 600, I can only wonder how long this viral issue will keep going around in circles.

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Quiet Easter

The girls and I are home taking it easy,

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We had a quiet walk this morning and it is really funny: we seem to be so in tune with each other and we know when we each don’t feel well.I guess I handle the leashes different, they hear me doing my prayers as we walk and it’s like we know it’s our quiet time together, Before we go out, I have to give everyone their medicine, including myself, and off we go. I am waiting not for the top of the hour, so I can give the next medicine.

Caregiver for the family: yup, that’s me!

I really don’t care because in my heart I know I am doing the absolute best I can for them, and I know they feel that.

When we were walking the beach today at lunchtime, someone took this picture of us.I love my gals!

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Hacking is Not Just for Computers….

Whatever was going around in my kindergarten classroom, it found me.

I started sounding a little under the weather on Friday and yesterday was close to death warmed over.I managed to get some help from my buddy Kate, and in addition to drinking enough Gatorade and water to fill Niagara Falls,well, I am hoping for a good night and a better day tomorrow.

It’s rough worrying about a scheduled day in the classroom tomorrow when I haven’t called out EVER on this job, but, you just don’t want to be carrying it around to the class.I never thought, in sixteen years of sitting on the other side of the desk, I’d hear myself worried about missing school.

Funny how the tide turns.
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Pre-Game Jitters

Well, thanks to me still being somewhat under the weather, it looks like we’ll be watching the big game tomorrow here at home.

In a way, that’ll not be a bad thing, as it seems that being close to my bathroom and being able to lay down when needed is an excellent idea.The girls and I will hobble along as needed, so the excitement for the big 50th game will be enjoyed from the sidelines.

I have some classic nibbles on hand for the game, and unfortunately, I think hot tea or ginger ale might be my beverage du jour.I have a chip and dip mix that I bought from Penzey’s Spice house, which is now available on line, so some veggies, Ritz “everything” crackers’ and some chips might be on the board for that.

If you are going out to see the game and are driving, please designate a driver.I need to have every reader I can hold on to…seriously, you are worth more than a super bowl party.

By the way, I leave this post with only one wish.

“Chicken parm you taste so good.”

Phantom of the Opera

I ended up coming home from work sick today, victim of a 24-hour bug.

While I was crashing and burning in bed,I had Netflix on the phone and found the 25th Anniversary of the Phantom of the Opera, that was taped from the Royal Albert Hall in London.

Oh, those were the days.

Princess Diana of Wales, in photos with the cast opening night. Later, Sara, Duchess of York in New York in pictures with the New York original cast. The romantic story of Andrew Lloyd Webber and his wife and leading lady, Sarah Brightman. Who could forget Michael Crawford as the original Phantom.

I finally pulled myself up to finish things around the house and am moving a little gingerly, but the words and music of The Phantom of the Opera really soothed the soul, and made 24-malady a little more palatable.

Nothing left to give.

The antithesis of a holiday weekend is the day after.

The day after ham, sweet potatoes, carrots, string beans, deviled eggs, cole slaw, and so on and so on…Even though I managed to crack 10,000 steps today and I just feel like a Mack truck ran over me. I made 15,618 steps and why legs are fine.My head is feeling the weekend. I proudly can announce I had no alcohol,due to medication I am taking,and yet, I am afraid I am going to collapse in the Jim column of ” its gotta be the pollen”.My head is exploding.

We have this week to kick back a little before we gear up for upcoming events. In two weekends, we go up to the big city and celebrate the 50th anniversary of my cousin and her husband.Two weeks after we have company coming down here.

The season is gearing up..no excuses..gotta get ready.

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Heartbeat

It’s St. Valentine’s Day.

I know a lot of single friends and there are all sorts of witty sayings going around on Facebook to either jab at those without a mate, or to commiserate with them.I feel for single folks, as I was one for 42 years and do remember what it is like.

For the past 15 years, I have been blessed to have Jim in my life.It was the classic 42 year-old spinster and the 48 year-old bachelor and yet here we are, almost 13 years later in our marriage, and it is safe to say that Jim still makes my heart skip a beat.

It’s funny,because I went to see 50 Shades of Grey with my neighbor last night, as Jim deemed it a chick thing.Yet for all the images conjured up by the movie,my best friend, lover and husband is indeed the one who makes my heart still skip a beat.We haven’t gone through children, only fur kids which can be up there with human children,deaths of parents,selling houses, moving, buying houses,jobs,retirement,illnesses, and, well, you catch my drift.We are on the road to hopefully growing old together,hoping that we are that blessed to accomplish that.

If you are reading this and single,I would tell you to hang in there if you are still looking, or good for you if you are comfortable in your current situation.If you are married like me, I hope you had a marvelous St.Valentine’s day.Savor love all 365 days a year, not just today.If you have lost your love one,cherish their memory!

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Fit Bit Bug

I was hit with a GI bug around 2am this morning.Not much fun.

The sleep I lost caused me to sleep a little later and wave “buh-bye” to 15,000 steps today.I realized from the get go that it is more important for me to get rid of this bug than to kick over another 15,000 steps.

I am going out now to give the girls their last stroll of the night with me.Jim took the first walk this morning, well, by default.It’ll be interesting to see what the final number is, as I just want to come back in, take a hot shower, watch American Idol, and go to bed.

Stay tuned….

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The week that was…

It has been a really long week.

Zosia’s injury had worn really worried us both, but she is working her way toward getting herself better, and with a watchful eye, we’ll keep our girl around for a good long while.

Then there was the camping out on the Schuylkill expressway in the bus.

To end the workweek, I started dealing with having to go to a needed doctor’s appointment this coming Wednesday which opens up more insecurity.Am I approaching retirement with the right health carrier? Do I need someone else?Do we switch physicians?Fortunately, this is a four-day weekend for me, and I am scheduled for a seminar about my retirement benefits in two weeks. It doesn’t stop the worry though.

Jim is just struggling dealing with me and Zush and everything else.

It goes without saying that a restful weekend is hoped for.

Here’s hoping yours is the same.

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Zosiacare

Too bad my girl doesn’t qualify for Obama care..lol

All of a sudden Zush was in such apparent pain she kept leaving little yelps of pain out to let us know something wasn’t right. My nephew Gregory was kind enough to get over to the vet yesterday and pick up her Tramadol for her arthritis.That, we thought, would have resolved the issue but it didn’t.

This morning was not a fun scene. Zush obviously in pain yelping, Kasia wondering what’s wrong and me crying because, yes, damn it, they’re my fur kids.Managed to get through the day to 1:30, when I could leave for the girl’s 2:30pm appointment.

She was in such pain Jim had trouble getting her out of the car, but she got down and into the vet we went. Evidently, Zush’s spine was out of whack and now, with a steroid shot, and slow bathroom only walks, we’ll have our Zush up to speed in new time.When you are talking about a fur baby that’s 12 years old, well we had a big sigh of relief for our girl.She is the rock of our lives!

Below is a shot of Jim’s arm as he carries our Zush out of the back of the car.

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Showered with heat

Down at Undisclosed Deux, we have a large walk-in shower for our” later” years,

I guess that means now.

With the ache in the hip and just the aches from a general long week**yes,I know Monday was a day off** but there was nothing more the ticket for me tonight as relaxing as that shower.I had no adult beverages today, as I am careful not to do it with the naproxen sodium for the hip,and that shower was as relaxing as a cocktail.It was almost worth all the months we lived in a little 10’x10′ room while the house was being built.

Hopefully we’ll have a good night’s sleep and be ready for a good weekend.

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Curse or blessing?

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I have a Tuesday appointment with the doctor to be seen with my bum hip.I have to have an x-ray of the hip to take with me.

In the meantime, I have read over the possible diagnosis, according to my buddy Matt, who was my Physician’s Assistant**sorry Kate** when I got my knees done.As I am not crawling now, I am assuming my hip is not fractured**fingers crossed** but merely bursitis.

Arrgh.

Two inch needle, spray to freeze area, insert steroid-I remember the drill oh so well from my knee days.Here’s hoping the hip fairs a little better.

The right bone is connected to the left…

003***Sigh***

Old age is not for sissies. I read this all the time.

I walk my dogs, take an exercise class, eat lighter now that it’s warm out.

I am in pain.

I thought it started as sciatica, but it stopped traveling and the hip just hurts.I waver between icing it or taking an anti-inflammatory, but I am afraid it’s going past that and medical assistance might be needed.Of course, I really don’t want to pay an orthopaedic man $30 to tell me I need to drop some weight. I KNOW THAT.

I need to lose this pain.

Stay tuned to this blog for the medical update of dancing in the world of medical co-pays, referrals, and hopefully, pain relief.

Hurting

Both Zush and I are slightly under the weather.

Thursday night we were coming in and I think Zush hurt her back paw enough that she kept her weight off it for a few moments. I don’t know what’s going on with me but my right leg is swollen up and have no clue on what’s what.

We are both keeping our walks to the least possible, to see if we both feel better. It’s not really what I need to be worrying about right now, but, hopefully, us old girls will have all our legs working well soon.

Long Weekend…

There is nothing like a weekend when you and your spouse are ill.

You never knew that you could possibly sleep as long as you do, and yet, you are literally down for the count, as it were. Then you have the question of what to eat. Our friend recommended more chicken soup, which there for a while, was a question if we ate it, could we keep it…hah, as if…

Our four-legged children are quite understanding getting out whenever we can get them out, and sleeping when we seem to either go down or nap.

The doctor’s office informed us that the waiting room was full of lower gastrointestinal and upper respiratory bugged folks.They kindly reinforced what we officially should do….

..if we only didn’t feel as though we were hit by a truck.

Yes, We have no bananas…

We haven’t been feeling well.

Our pantry shows it.

It is funny how you manage to find things that you have purchased not
that long ago, and figure, ok, it’s for a rainy day.

Uh, surprise! That rainy day is here.

It is a question of what we can eat, because the G.I. bug has stuck us
hard.Fortunately we had staples in the house, helped by my last day out,
when I bought ginger ale and saltines.We tried Chinese(bland) last night,
and it worked for me, but not so much Jim.

I’ll be glad when we are better!

Hacking

For once it wasn’t my sinuses. Imagine that.

I went to the Doctor today and ended up with two inhalers, cough suppressants, and a referral for a chest x-ray. Can you say viral?

Gee, knew I was sick.

Jim mimics my cough, but as lousy as mine sounds, you can multiply his by 10. I just hope his doesn’t turn into a hospital trip, since he wouldn’t go to the doctor.

The fur girls know we are sick~ pretty compassionate!

We’ll keep you posted!

Bah!

The 90’s hit “You’ve had a bad day” came home with me tonight.

Jim is sick with a hacking cough. Hot soup for dinner~ he doesn’t want to eat. I went up with the girls to see my friend who is very sick.She fell off the toilet because her legs are getting worse. Now I have to go down to my friend whose husband is in rehab. She is scared about caregiving: she has been married 55 years and is afraid to see what happens down the road.

I try to help, but after a while, it’s a rough gig!

A P.S.- to cap dinner off, my husband just dropped a roast beef, albeit a small one, on the floor ….

Did I mention Zush is happy? 😀

So really…

I try to be a nice person.

Really….I do, albeit sometimes TRY is the operative word.

We have returned to the working world after our GI/upper respiratory interlude and I am back on phones talking to people, trying to assist them. I must really be a good salesman. I take the calls and try to troubleshoot them in the most time-efficient way, and try to keep the caller updated on progress.

I got off the phone just now and damn, I wondered while hanging up the phone…..WAS THAT ME?

It must be time for me to retire because I sounded cheery, helpful and the caller thanked me profusely and wished me a happy holiday.

Oh.

I get it.

First time back on the phones since Friday……lol

 

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Happy birthday in Heaven

It’s been a year, Mom.
A year since I got to sing Happy Birthday to you.
A year since I gave you some chocolates, fuzzy socks you always liked, and sang Sto Lat.

Well, you didn’t make one hundred . You hit eighty- nine. I was blessed to have you for fifty-two of them. There’s not a day that goes by that I don’t miss you. I miss those blue eyes, that soft touch, that smile.

Happy birthday in Heaven, Mom. I know Dad made the pound cake for you , not our favorite 1-2-3-4 cake. I’m glad Dad is with you to get you your first heavenly birthday card.

Our December birthdays won’t be the same without you.

Love,
Marisha

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Sutures for a BFF

One of my BFFs, Juls, is taking a page from book.

She is having shoulder surgery Friday.
** working the beads**

Being in the big city with a lot of university hospitals, and being an old pro with doctors, well, let’s just say I don’t care for pain, especially when it wakes me from a sound sleep.

I know surgery is scary, but know you’ll hold a good thought for Juls on Friday.it’s always good to get your health back.

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Recuperation Station

Shingleman is out being a guy at Home Depot. I have the Food Network on for cooking, the girls are gently dozing, breeze is blowing….

Welcome to my recuperation station…aka., Undisclosed, as I kick back and relax!

Sure I am still hacking, but not quite as bad. I am forcing fluids to beat the band, and Zush and Kasia figured out Mom doesn’t feel good. It’s a beautiful day out,I am feeling a little better with less wheeze….

It’s a good thing!

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Wishing it were over…

…and I could wake up on Monday.

One holiday that always was tied in to my upbringing and childhood was Easter. There was always the Holy Week services, walking down the hill with two or three of my classmates on Good Friday and we would go to all five of the parishes in the area and say a prayer. As I got older, I helped a few friends decorate the altar for Easter Sunday and pin the grave that the crucified Jesus would lay in on Good Friday and get the side altar for exposition on Holy Thursday and through the weekend.

On the secular front, when nephews were younger, I would go to the local confectioner in town and get everyone an Easter egg, including my Mom, who was a coconut creme girl.I would always buy my Mom a white hyacinth for Easter, kind of in homage to all the Easter processions I walked in as a kid. My brother Bob would always get her a grape one. My Dad, when he was around, always got her an Easter lily. When I was in high school, my brother would bring home a horseradish root which was divine. See, it was as if it were homeopathic we would take turns with the grater and a bowl while sitting on a stool on the front porch and we would grind our own horseradish. Who needed decongestant? Bobby and I both still have Philadelphia sinuses, so we didn’t mind.

When I was a younger, the Polish tradition dictated that we are up early Holy Saturday morning, as the priest would be coming to your house to bless your Easter table. You would have a carved butter lamb on it, Easter basket, your kielbasa, babka, which is Polish cake/bread ,your horseradish, farmers cheese,hard-boiled eggs, salt and pepper, wine and oil and vinegar on the table. All had some significance for the Risen Lord. As we got older, we took the baskets, and my brother still does, down to church to have the food blessed.

For six of the past ten years, I would have an Easter brunch here for my family, and then go to Jersey to one of Shingleman’s sister’s for Easter. The past four years were quiet for me, as I was watching Mom with Bob. It was the best, and saddest time with her, as her faith was steadfast, but you knew there was an expiration date that you just couldn’t see yet.

I really don’t know how I am going to get through Sunday. Yes, I have the memories of my Mom, but when you go with other people, they really don’t care HOW you are feeling. For all they care, your grief stopped when you put your Mother in the ground, It’s not that easy. Somehow, I guess I am going to have to try to get through it, wishing instead I could be alone with memories of Mom. I just hope people will leave me alone, as things have been on the edge for both Shingleman and myself, and we are shot. We are good actors, because when people see us, they don’t figure it out. Our smile goes off as quickly as it goes on. We have both been through a ton since the holiday, and, quite frankly, we are still going through it.

I would happily trade places with the younger me who walked in Easter procession in 1967. The current me is so deep in emotional loss that it almost takes my breath away, as it is that intense.

“You can’t go home again.”……if only I could.

Dad and his girls

 

 

My Jim is too funny.

Sick with his shingle pain, looking really twisted up with agony, moaning, ..whatever,….then one or both of our fur kids come along and he starts laughing. We always knew our Zush, the older gal, was our child in a fur suit. Our friend, Georgine, says you talk to Zush and she looks at you with those eyes and its like she is looking into your soul. Zush is respectful if you aren’t well. She’ll curl up next to you and be quiet company, and , once in a while she’ll give you a kiss.

Kasia, the baby fur kid,may understand you aren’t feeling well, but she’ll still come up to you, hit you on the shoulder ever so gently, and as lousy as you feel, you can only smile when you rub her belly and she stands as still as a statue. For both of them, if you stop doing whatever they like you doing, they nudge you to tell you not to stop.You can only laugh at that.

Our gifts from God- they’re the best medicine in the world.

 

Rare Disease Day

To call attention to rare diseases, today has been set apart as rare disease day. It is a jean wearing day and supporting the causes you believe in, and I believe it was being promoted by Facebook.

My good friend, Duch, lost her granddaughter  Leah to Epidemolysis Bullosa, a disease which people who are aware of call the poor children afflicted by it( meaning EB, for short) “Butterfly babies”, as their skin is constantly breaking down at even the most light of touches. My husband’s niece, Dawn, and her daughter Kayla, both are in hospice care suffering from Mitochondrial Disease. My good friend Ivana’s Mom is suffering from Scleroderma, which is a disease that I lost my Aunt Jennie, who was my godmother, to.

It is very easy for people to lose sight of what is good, and complain about things that “bother” them.

It’s a good day to count your blessings and support, in whatever way you can, those who are suffering from diseases that are, in a sense,  eventually killing them. Hopefully cures are being worked on to spare patients and their families the pain. Also, please take a minute to hold up a prayer  or good thought for those who are the caregivers for those suffering for those rare diseases, along with the patients. It’s a long haul for everyone.

Status of ths Shingle-man

Here is a shot of Shingle-man, aka, my Jim, who was playing guitar last night when his Mom and sister were over to pay us a visit. They figured since he is past the contagious stage, it was worth the trip. It was really funny because although he was not quite as miserable as he has been, they could see the difference in him was the medicine was kicking in. We both were sleepy, and we are not talking midnight, here, folks, we are talking 8P.M. My Kasia is sitting by her boyfriend, Daddy, waiting patiently for Mom to take her and Zush out for a walk.

We are leaving mid-day for the ‘Undisclosed Location”, as our feeling is it is just as easy to feel lousy there, but there is something about being out of the city that makes it all a little better.

Have a wonderful weekend!

If only

The increase of Jim’s medicine has not really kicked in yet. My morning was partially occupied with washing a load of towels, as hot showers seem to be the only relief he gets.

He did help me as I made chocolate covered pretzels this afternoon. I went with my buddies on our 4.2 mile walk this morning, and the girls are worn out from the walking we have done so far.

Now, if only Jim felt better…..

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Wish a shingle was only for a roof.

Jim’s shingles are a new experience which, quite frankly, I wish I never bought a ticket for.

I love my husband. Really.I do

Coming off of care giving for Mom, at least with Mom you could figure out how to make her comfortable. In a sense, it was basic care 101.

Shingles? Hah.

My friend Kate has been holding my hand through this and the doctor actually responded to me this morning but, **shaking my head** I just don’t know.It’s as though the Bermuda triangle has hit and we can’t seem to pull ourselves out of it. I know I can’t make his pain go away, but at the same time, I can’t seem to even help make him comfortable. It is a very frustrating situation that I find myself in. The doctor called with a basic increase in medicine this morning, and perhaps that’s the ticket. I hear from people who had relatives who had it and how badly the pain affected them and, quite frankly, I get scared. Cancer hits, you know you are losing control of your body.When possible, you do everything within your power to rid yourself of it. Dementia hits, the scariness is that your mind is going. Shingles, that damn dormant chicken pox virus, lies dormant, comes out with stress, bites you in the butt and seems to suck the life force out of you. It is truly an “E” ticket ride.

Me? Well, I’ll keep on keeping on, keep working the beads, and looking for only the “A” ticket rides.

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Another day

Off to the most scenic area of the city **read heavy sarcasm here**to perform my job. Fortunately I am going to be with my boss, as no one should be going through that part of the city solo.

The girls got a really good walk through the woods with Mom this morning, so hopefully they will be tired out until Daddy comes home later. Jim’s rash seems to have disappeared in the back, and the shingles are working their way  back down the food chain.

Here’s hoping that a page has truly turned and maybe the household will be going on an uptrend again,

Faith is…

“Now faith is the substance of things hoped for, the evidence of things not seen..”

One of the many things I am so thankful as I begin the new era of my life without my Mom is how she brought me up.

I am no saint, but she truly worked on instilling faith into me. Hey Mom? It worked.

Three cancers I fought through: I had faith.

Losing my Dad? Now my Mom? FAITH.

I know that she has  been greeted and is safe and secure in heaven. It is so funny, as in our “black” humor,Bob and I have been talking to each other saying who has Mom tonite. Last night we said it was Paul, the undertaker…and we joked about making him tuck her in tight. Well, not to fear: God has her wrapped up tight and she’ll be secure forever.

Sleep tight Mom.